It has been two years since Robin
Williams died, and his widow, Susan Schneider Williams, continues to work to
spread awareness of the brain disease that led to his suicide, Lewy Body
Disease.
In a heartbreaking essay titled
"The Terrorist Inside My Husband's Brain," Susan writes about her
late husband's final few months and how the disease that he didn't know he had
consumed his life. Sharing that Robin's many symptoms didn't fit any one diagnosis,
Susan explains that he had to deal with not only physical limitations such as
heartburn and poor sense of smell but also mental incapacitation.
"By wintertime, problems with
paranoia, delusions and looping, insomnia, memory, and high cortisol levels—just
to name a few—were settling in hard," she writes. "Psychotherapy and
other medical help was becoming a constant in trying to manage and solve these
seemingly disparate conditions."
while filming Night at the
Museum 3. "This loss of memory and inability to control his anxiety
was devastating to him," she writes. One month before he died, Robin was
diagnosed with Parkinson's disease, and while he found comfort that there were
some answers, he continued to struggle.
"He kept saying, 'I just want
to reboot my brain.'" Susan recalls. "When we were in the
neurologist's office learning exactly what this meant, Robin had a chance to
ask some burning questions. He asked, 'Do I have Alzheimer's? Dementia? Am I
schizophrenic?' and when his doctor said 'No,' Robin was unsatisfied."
Although his condition continued to
worsen, Susan recalls what would be their final day together—and how it gave
her hope that his health would improve. "We did all the things we love on
Saturday day and into the evening, it was perfect—like one long date,"
writes Susan. "By the end of Sunday, I was feeling that he was getting
better. When we retired for sleep, in our customary way, my husband said to me,
'Goodnight, my love,' and waited for my familiar reply: 'Goodnight, my love.'
His words still echo through my heart today."
She ends the essay by thanking all
the doctors and scientists who continue to research LBD. "Thank you for
what you have done, and for what you are about to do."
Source: Eonline
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